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The COVID-19 Pandemic: Early Ripple Effects in Pediatric Palliative Care

  • Linda Marisol Bustamante
  • , Regina Okhuysen-Cawley*
  • , Julia Downing
  • , Stephen R. Connor
  • , Mary Ann Muckaden
  • , Marianne Phillips
  • , Andrea Icaza
  • , Nicole Garzon
  • , Yuriko Nakashima
  • , Kelsi Morgan
  • , David Mauser
  • , Michelle Grunauer
  • *Corresponding author for this work
  • Unidad Nacional de Oncología Pediátrica
  • Baylor College of Medicine
  • International Children’s Palliative Care Network
  • Worldwide Hospice Palliative Care Alliance
  • Tata Memorial Hospital
  • Child & Adolescent Health Service
  • Hospital Axxis
  • Universidad de Guadalajara

Research output: Contribution to journalReview articlepeer-review

1 Scopus citations

Abstract

Palliative care, which aims to provide comprehensive, interdisciplinary, holistic care to children, adolescents and adults with life-threatening, and ultimately life-limiting conditions, is a discipline that has emerged as an integral component of healthcare systems throughout the world. Although the value of life-affirming palliative care (PC) has been shown across many domains, funding and acceptance of palliative care teams have been variable: some hospital systems have free-standing, dedicated interdisciplinary teams while, in many instances, palliative care services are provided “pro bono” by individuals with a special interest in the discipline, who provide PC in addition to other responsibilities. In this article, we hope to highlight some of the observations on the early effects of the COVID–19 pandemic on the provision of PC in children.

Original languageEnglish
Article number642
JournalChildren
Volume9
Issue number5
DOIs
StatePublished - May 2022

Keywords

  • COVID-19
  • SARS-CoV-2
  • burnout
  • global
  • pediatric
  • pediatric palliative care
  • resilience

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